Sunday, November 20, 2016

What it's like to live with #PCOS



What it's like to live with #PCOS

Author:Ashley Levinson
Twitter & IG: @PCOSgurl



Many people have read my posts about #PCOS but I often wonder if they really truly understand what life with PCOS is like for those living with this syndrome.

The best way I can explain it to someone who is not living with it is it's like being in a glass box..... sure people can see you but they can't hear you, they can't feel what you feel and they can often put you on aloo shelf and invalidate you if they can't understand.

The truth is, many of us feel trapped inside this glass box... often screaming..trapped in bodies dealing with symptoms many can't see and the symptoms that are seen often make us feel like we are being judged, like it is somehow our doing our fault..... yet we can not escape it...

What PCOS (polycystic ovary syndrome) is, and what it does to women who have it, is complicated to explain as symptoms and severity of the syndrome can vary from person to person.

Some of the classic symptoms are drastic weight gain, hair loss, depression, fatigue, thyroid problems, high cholesterol, panic attacks, headaches, dizzy spells, poor memory or muddled mind, sleeping disorders, constant thirst, extreme cravings, insulin resistance, cystic acne, cystic ovaries, menstrual cycles without ovulation, irregular cycles, severe mood swings, high testosterone levels, infertility problems, excess facial and body hair, not to mention a seven times greater risk than an average woman for four major health concerns affecting women in the United States today including heart disease, diabetes, cancer and stroke.

Even though #PCOS was first recognized over 75 years ago, we are no closer to understanding its cause or its treatment. There is no singular test that can conclude whether a woman or girl has the syndrome instead it is a collection of symptoms, history and diagnostic testing.

As a result once a doctor concludes it is Polycystic Ovary Syndrome, they manage the symptoms to prevent long-term health consequences such as infertility, diabetes and heart disease.

As it currently stands, PCOS is the most underserved health issue affecting women with less than 0.1% of NIH Funding in the United States  being dedicated to PCOS research, diagnosis and treatment.  Furthermore, although there are guidelines that have been set by multiple organizations with regards to diagnosing PCOS, there is still no universal criteria or category for the syndrome. Until this is addressed, many women will continue to suffer needlessly wondering what is wrong with them.

PCOS Awareness has to happen now to ensure women and girls do not have to go through another day, month or year of silent suffering..... Please join the PCOS Community in learning more about this syndrome, make your voice matter for millions of women worldwide who only ask that people to realize Why PCOS Matters.....

Join us in our fight...


Sign the PCOS Petition
https://t.co/7MjGyvVRqU

1 comment:

  1. How i got a cure for PCOS (polycystic ovary syndrome).

    I actually promised myself that i will do this because i never in life thought i would be cured of PCOS because my gynecologist told me there was no cure and because of this i could not take in and get pregnant. I had PCOS (polycystic ovary syndrome) for 7 years and this was a big pain to me and my husband due to the downcast we felt for not having a child. I experienced irregular periods or no periods at all sometimes, heavy periods, i gained weight (fat). I seeked a cure from one doctor to the other used androgen, clomiphene, metformin and even traveled to different states to see other doctors to no avail. My husband got to know about Dr. ALeta via a testimony he read on the internet on how a woman got a cure and he contacted her with the contact she left. I got the herbal medication and used it for the speculated 3 months that was all i have a son who is just 8 months old. Do not give up just contact her on (aletedwin@gmail.com) on how to get the herbal medication. Thanks and i wish you get cured soon too.

    ReplyDelete